Philzone.org Discussion Board: Archive 2004: Hep C Archive: GOIN' DOWN THE ROAD FEELING BAD

Hi Everyone,
Just got back from my Appointment, and again it
was a F---kin' waste of my time and energy !
I am so pissed off right now,than since i don't
have any buds, I am sitting here drinking a 24
oz. Icehouse !!!
As it stands right now :
Genotype : 2a
viral count: 850,000 (2001) no present count
RNA Quantitation : 5.9 LOG 10

AS it looks right now, it will be March 2005,
before I find out if I am eligible for Tx !!


So what the fuck do I do ???

I am feeling like a Loser again !!!!

Bruce

Take a deep breath!!! The most important thing is that waiting a couple of months will not compromise your health, providing you take basic care of it! (What is a two four of IceHouse?)
As we are all aware that we've no doubt had this dragon breathing down our asses for a number of years a couple of months is not going to shake it one way or another!! The main thing is finding out your eligibility. I know you have an unique situation and you've had lots of people offer help and information in that department so I won't go there.
YOU ARE NOT LOSER!!
I'm at work right now and have to go. Just wanted you to know I'm thinking of you and am positive this will work out for you. It's apparently not going to happen in the time frame that you had planned but............
I'm sorry you are so unhappy
Peace
Ceilidh

two four of Icehouse, is a 24 ounce of Icehouse
Beer !!!

Bruce, SLAP!!!!!!!!!!!!!!
Many people have had to wait to get on tx. The important thing is, you've got the ball rolling in the right direction. PUT DOWN THE BEER!!!!!! turn on some Dead. Don't blow it now and go in the wrong direction. I know it is easier to say than do, but have some patience. We are all here for you and eventually you will get on. you'll still have time to tx before your' sweetie can be there.

Hello Bruce,

I am sorry for your disappointment and understand your frustration. I found out I had Hep C November of 2003 and didn’t start the Tx's until April of 2004. I now know starting the Tx's was not as time critical as I first thought, but when I first found out I was infected, all I knew about the virus was that it killed the only 2 people I knew that had it. Quite frankly, I thought I was a dead man, so I was quite eager to start taking anything that could possibly save my life. I know dealing with the medical profession can be very difficult, but I hope you can find a way to not stress out too much, because stress certainly will not help your current health situation.

" So what the fuck do I do ???"

I hate when people ask me that. I truly wish nothing but Good for my fellow man (and woman), but I am a no nonsense, no bullshit kind of guy, and tell it like it is, without sugar coating things, which sometimes people don't want to hear. I truly hope you find a way to deal with your present frustrations, but are you out of you freaking mind drinking beer to ease your stress. If you are truly concerned about your health, which I'm sure you are, I believe it would be in your best interest to refrain from alcohol. Regarding the weed, unless one is using it for medical reasons, it is probably best left alone due to the emotional roller coaster the Tx's and virus cause. If anyone feels the need to justify smoking dope, no need. I've was given, by a concerned friend, a tubaware of skunk shortly after starting Tx’s, which fortunately I have not had the need to use up to this point. I just feel that I'm ingesting enough crap already and I don't want to put anything else in my body that shouldn't be there. I do not know your situation regarding approval for Tx's, but I saw some postings recently here with links to info about getting free meds from the drug companies. I really hope things start to turn for the better for you, and in the mean time, for the love of ones self, stay off the drink. The best thing I've found to help me feel better is a strong dose of Live Dead, but please be fore warned:

WARNING: Listening to the Grateful Dead for extended periods of
time may cause euphoria. Spontaneous dancing and grooving
have also been observed in individuals spending long periods of
time listening.



Best regards,
NYJIMMY

It is always darkest before the dawn, but if you stay on the bus, it arives at daybreak to a bright and sunny future.

Hey Bruce,

Light the song with sense and color;
Hold away despair, more than this I will not ask.
Faced with mysteries dark and vast

Bruce Hang in there
I had to wait a long time and it turned out for the best. Losers don't vent with a support group!It takes a lot of guts to be able to vent, so stop beating youself up. Put on some good music(try this) www.techwebsound.com (sixties stuff some obscure) have some ice cream.You'll be phine.

Bruce-Jimmy C. is on it-you MUST immediately find a way to QUIT drinking alcohol. It is over for drinking,dude. No Doc. is gonna treat you unless you can honestly say that. It's like putting gas on a fire bro! Just callin' a spade a spade- and thanks for your candor. Earl<><

Good point Earl...

Bruce-
I've been sittin' back smiling (with you) watching your progress thru all the phases leading up to Tx. We've all been there...
Now, TAKE A BREATH!!!
It's a very rare thing to get Tx started without a bunch of hassles and hoops to go thru. Almost everybody here has stories of Doctors who won't listen and pharmacists that can't read.
You have all the tools to make this happen, IF you take control and don't let other people tell you no.
Talk to Cap'n Budley. He scored his meds on his own then went to tell the Dr. about it.
Donna in Reno was told No by Medicare- it was only about 1 month 'til she had free meds from Scherring. EVERYBODY gets told no by Social Security the first time.
On the bright side- If I had your genotype, I'd be done by now!! Think about it... 6 months sounds like a lot, but if you can get this started, you'll be SVR by the time your sweetie is ready to travel. This crap will be faced down and behind you soon.
I don't want to sound like a hardass, I'm just pointing it out- you have 1 more of the "No"'s behind you as of now. If you score the drugs, can the V.A. refuse to draw your blood? I don't know for sure- do you?
Enjoy that beer, then put it down. No time for that. Another beer won't improve your situation or your outlook at all.

Hey Bruce,

Take it easy brother, every little thing is gonna be alright!!
Seriously now man, things didn't work out the way you planned, and I know your dissapointed, but things will work out, believe me!!

O.K., you came to the right place to vent & bitch, and all that kind of shit.I know it's
tough, and I can sympathize with you. I've slipped myself and had a drink before when I heard some depressing news or bad news. I certainly am not proud of that, nor do I think it's good, nor would I ever advise anyone to do it. Exactly the opposite. I just want you to know your not alone in this slip up, o.k. ? I think that it is only human what you've done and alot of others have done the same thing , so don't
come down real hard on yourself. I do hope you will stop however for yourself though. You know what's best brother, but were here for you regardless. Just please feel free to come here no matter what.....whether you do drugs, or drink or whatever. Of course folks aren't going to condone it, I don't think you'd expect them to , would you? That's probably why you said it in the first place, honestly ya know? I mean you wanted to be told not to, right? At least that's what I would assume.
I do that myself when I want to be told I screwing up. I come out publicly and say...."Man, I know I'm fu--ing up, but......."! Isn't it funny in a way how we come ot when were looking for help!
I just want you to know bro, that I feel for you, but take it easy, after you get started on this shit ( er, ah, I mean treatment), you'll sit back and laugh, cause you'll see how bad you may have wanted them to delay getting started. It aint easy, what your going to be doing my friend!
.....but N.Y. Jimmy does have it right about the alcohol. You know that already however so I don't have to say shit about that.
HEY...your a grown man alright!! Youy do whatever you want to do, I'm certainly not going to pronounce any judgement on you no matter what you do. I just hope you cut to the chase pretty quickly and get a grip on your emotions, and chill out some.
Were all here for you brother, on your side. Were not here to come down on you....but you can expect to [probably hear a little flak from some folks for drinking the beer my friend. All I can say is expect it!! But know that's it out of love & concern for you, not because anyone wants to bitch at you.

Me, hey I totally understand, probably because I've screwed up alot of times myself after hearing bad or depressing news...... so I really have NO room for judgement or admonishment in any form really.
I'm not bragging beleive me. I'm ashamed to say it.....but it's the truth. These other folks now....they are totally right, so listen bro.....and listen good. They are speaking the truth, and we all know what the deal is, when it comes to drinking & drugging when it comes to our Hep-C.
All I'll say is, I'm here for you. I've finally come to grips with alot of the bullshit, but I know myself well enough to probably say, that sooner or later I'll probably slip again, but this time I'm going to pick myself up, wipe myself off, and just start again. That's about the difference in my old self and me now!

....Anyway, I just hope the best for you Bruce, and please feel totally "free" to vent here at this site, cause that's what it's all about. I think everyone here, especially the folks who've already spoken would want you to do the same, and continue to do so.....without fear of being publicly shamed.
One thing I do admire my friend.....and that is your brutal honesty, even at the cost of maybe feeling down and out right now! man, I personally know exactly how you feel, and I think we all do.
It's just time now, Bruce....for you to dig down deep, and find that strength to carry on.
Hell bro, it's just a few months.....you will survive, right? Just stick around here and get the support you need,,,,,,,say fu-- it to the beer, and spark up a doobie. Aint that good enough man? Shit, I wish I could do that legally here, so at least look at the bright side of the picture, eh?

Take care....and "Keep On Keepin On"!!

Hello Everyone,
I am doing alot better now, Thank you everyone;
I needed and deserved to get chewed out !!!!
I did put up the beer, and laid down and took a
hour nap, and now am watching "DOGMA" !!!!! I am
now doing alot better now, and am in a great moods !!! You all are right, I am not a loser,and
the time is not the right time to reverse all the
positive things I have done to get where I have
gotten !!!!!
Thank you all again !!!
I did call the Veterans Administration, and am
going to get an appointment to their Local Clinic
in 4 to 6 months !!!!

Bruce

Sounds much better Bruce, and that is a great movie. Call Sherring and Roche Labs tommorrow. I believe even bloodwork is free.
PEACE, Mark

Right on, Bruce!
And I can't think of much to add to Mark's post.
Check in with us tomorrow to share the info-
Do the Pharm companies pick up the bloodwork too?
If they do.. Hot Damn, you are On The Bus!
Make those calls, right?

First off, let's all say a prayer for all the
victim's from the wrath around the Indian Ocean.
The only known victim from Alaska, was a 30 year
long friend of mine. And now the real tragety is
only beginning. The Pharmiceutical company Phiser
(Viagra) matched Bush, with 35 mil. in aid money.
So call Roche or Shering, they got lots of money.
Matter of fact, I got a four month supply of
Pegasus/Copegus, stockpiled, if you Bruce or any-
one else wants to start right away. But you'll have to pay for your own bloodwork. The Pharm companies don't.In my mind and soul, the Great Spirit, has set everyone's destiny already. So
Bruce just go with the flow, do what you gota do,
cause it will happen, when it happens.......
Prayers/Peace & Love, sea ya

I am going to call the Pharm Companies tomarrow,
and get the info needed !!!

Thank you all!

Bruce

Well, before I can even think about getting the
Tx, I will have to wait for a appointment to see
the Liver Doctor, because apparently my doctor
can not prescribe Tx treatment for me, so as I
said earlier Today was a waste of time !
So now I am still at achieving nothing until my
doctor sets up the appointment to see the Liver
doctor in Bozeman ! As before with the ulrasound
I had done, it will probably cost me another
$ 256.00, which I will have to pay also out of
my pocket! Then it will be that Liver Doc who
will determine if I am even able to get on the
program !!! So in either case, I'll still end
waiting up to 4-6 months,before I can start the
treatment !!! So I guess all I can do is wait for
my doctor to get his head out of his ass, and
do something !!! What a fuckin' racket these
doctors have, and we are the real victims to the
doctor's whimms !!!
By the way, my Doctor is refusing to prescribe
the Medical Marijuana to me, so I am also really
pissed off about that to !!!!
So Whatever !!!!!!!
I drank only that one beer, and now went back to
drinking coffee !!!!
Thank you all !!!!!!

Bruce

Bruce

This is all SOP....Your primary care Doc does not prescribe tx.. only a specialist will do that... and it is typical that it takes a referal from your primary Doc to get in to see the specialist. There are a lot of factors involved and it takes the specialist to determine if and when you will start. So your visit to the Doc is not a waste of time..just one more step along the way.In the meantime all you can do is do all you can to live healthy. As for Med MaryJane.. the doctors are affraid to prescribe it until the Feds decide it is OK..and that will take legislation from congress as the federal government is bound by law to enforce the laws set forth by congress. Be it the current adminisration or the one before it.. or the next one to come. (High School Gov 101)

Be at ease Bro....

I just wrote a long and rambling response to the feelings expressed in this thread, and having read it prior to posting, deleted it.

Bruce, don't let it throw you.

Jim

Bruce, I'm sorry you're going through all these hassles with your dr. and having to wait a while longer before treatment. I've read many places that you have to learn patience with hepc. You are always waiting for something - to get a biopsy - to start treatment - to get blood work done - to get results, etc. When Kevin found out he had hep 2 years ago, at that time you had to get on a waiting list for meds. He had to wait from April until September to start. The time will pass before you know it. Use the time wisely to get in a good place, both mentally and physically. Take care of yourself and know that you've got the best support in the world - right here.

Hey Bruce,
I'm glad to see you are in a somewhat better frame of mind. As Dan pointed out, there is a whole litany of crap one must go through to get on the Tx's, but knowing what to expect coming in may help lessen the frustration level later. I wouldn't fret too much about not getting a script for the weed. From past posts you made, It sounds like you've been smoking for some time without a script, and I assume you will continue to do so now, so nothing has changed. I do not know much about the Medical Marijuana laws, but I think possibly the script only allows you permission from the state to smoke, which I personally don't need if I want to take a toke. I'm not sure if the script actually allows you to go to the drug store and buy some bud. If someone could let me know what a script for Medical Marijuana allows you to do, I would appreciate it.

"I just wrote a long and rambling response to the feelings expressed in this thread, and having read it prior to posting, deleted it. "

Jim, I have done the same thing well over a hundred times since joining this board. Doing what you described has helped me vent, and deleting prior to posting help me avoid unnecessary stress.

Best regards,
NYJIMMY

Hey Now, Here in Alaska, Pot was legal to grow and
possess on your property from the early 80's till
the 90's when everyone was too stoned to go out
and vote, the churchladies had it re-criminalized.
Now it is medically approved (state level) and
back to the 80's status at home. But all the doctor's can do is recommend it, not prescribe it.
Like Dan saids, Bush will never approve it, so it
will be atleast another 4 years. My hep-doc said,
that studies show that CO2 from pot and/or ciggies
accellerates the fibrosis in liver disease. It's
your liver, so do what you want. As I put a patch
on, just for Today and maybe tomorrow. SEA YA

Hello everyone.
Well,I got a good night sleep and woke up feeling
alot better! I put on some Grateful Dead-
" So many Roads (1965-1995) sampler", which has
a few songs by the "Warlocks" but most of it has
Grateful Dead!!!
Thank you all so very much, you have all helped me
so much to let me vent my Rage, and to let me Know
that everything takes time to go through the
proceess of start the treatment !!!!!
I do apologize for my fire temper, most of my
Rainbow Family has seen it and have learned to get
use to it, though since they all have very little
knowledge of Hep-c; they aren't very good at the
helping me!!!! I feel like a idiot the way I
acted at first, but as I said I am doing alot
better today !! I still am going to contact both
the pharmacutical companies and get all the info
I can on their Tx , as well as getting a application for their program !! I see it this way
that i can at least still do what I can to get the
ball rowing in the meantime !!! I am sitting here
with a cup of coffee, and a bowl; getting into
firing it up and see if I can get stoned this
cold and raining day !!!!
I Love,care and support you all, as you all have
shown me !!! Thank you all again for being there
for me !!!!! Its nice to have a Pfamily who really
understands the suffering and pain one goes
through with this disease !!!
I guess all we can do is.. Face this old Dragon
head on, do what we can to fight and slay this
old SOB !!!!!! Kick its ass, and send it Packin'!
ALL MY LOVE< CARE< AND SUPPORT TO YOU ALL!!!!
Well, tomarrow is the last day of the Year, So
HAPPY NEW YEAR - 2005 !!!!!


LOVE YA ALL !!!!!!


Bruce

Bruce, just like chicago jim said, no use in rambling either. Everyone has said it all. This is the place to hear it all, This too shall pass, take a deep breath. The waiting is the worst, but you got to do what you got to do! all bullshit aside. One day at a time!

Bruce, I intended to help you out with some VA stuff because I was under the impression that you did not have doctors or that you were having trouble finding healthcare. Later I read back through what you had written. I then realized that you did have some form of healthcare and figured you were on track and did not need help finding the resources. Now, I am even more confused and concerned that something is not adding up. If you are a Vet and are willing to jump through some hoops you will get what you need, little to no delay, especially in places like MT, WY, SD, west TX (places where population density is sparse and the VAs are wanting to increase their #s in order to keep from being closed, job security kind of thing. It's gonna take a commitment from you though. Those doctors are not going to play games and attempt tx if the patient is not sober, stable on their prescribed meds, and at least 59% honest. Ft.Harrison has excellent programs. I'll call if I can find your #. Think ya posted a while back? or post it again if ok. Oh, and by the way, I have never come across a VA doctor who denies healthcare becase herb use, so don't worry about that. Something ain't right.

Hey Now Bruce.....You sound much more positive today...good job. The waiting game is all part of the deal, may I suggest you have some ice cream?

Games People Play
The Alan Parsons Project

Where do we go from here now that all other children are growin' up
And how do we spend our lives if there's no-one to lend us a hand

I don't wanna live here no more, I don't wanna stay
Ain't gonna spend the rest of my life, Quietly fading away

Games people play, You take it or you leave it
Things that they say, Honor Brite
If I promise you the Moon and the Stars, Would you believe it
Games people play in the middle of the night

Where do we go from here now that all of the children have grown up
And how do we spend our time knowin' nobody gives us a damn

I don't wanna live here no more, I don't wanna stay
Ain't gonna spend the rest of my life, Quietly fading away

Games people play, You take it or leave it
Things that they say, Just don't make it right
If I'm tellin' you the truth right now, do you believe it
Games people play in the middle of the night

Games people play, You take it or you leave it
Things that they say, Honor Brite
If I promise you the Moon and the Stars, Would you believe it
Games people play in the middle of the night

Games people play, You take it or leave it
Things that they say, Just don't make it right
If I'm tellin' you the truth right now, do you believe it

Games people play in the middle of the night

System Of Doctor Tarr And Professor Fether Lyrics

The Alan Parsons Project

Just what you need to make you feel better
Just what you need to make you feel
Just what you need to make you feel better
Just what you need to make you feel

At the far end of your tether
And your thoughts won't fit together
So you sleep light or whatever
And the night goes on forever
The your mind change like the weather
Your in need of Doctor Tarr and Professor Fether

Even clouds seem bright and breezy
'Cause the livin' is free and easy
See the rat race in a new way
Like you're walkin' up to a new day
It's a wise thing if you're clever
Take a lead from Doctor Tarr and Professor Fether

Find the end of the rainbow
Fly wherever the winds blow
Laugh at life like a sideshow
Just what you need to make you feel better

Satisfaction altogether
Guaranteed by Doctor Tarr and Professor Fether

Find the end of the rainbow
Fly wherever the winds blow
Laugh at life like a sideshow
Just what you need to make you feel better

Don't stop bringin' the girls round
Don't start havin' a showdown
Keep on handin' the jug round
All that you need is tx and good company

Bruce, I found that there is nothing about the whole tx thing that starts easy. I was on a waiting list for many months because there allegedly wasn't enough medication at the time to spread among the masses. Right after I got on tx Schering cleared the waitlist.

Don't give up. Patience is a huge virtue when dealing with this situation.

Strange....all the vets I know on treatments or that have been on tx did it directly through the Veterans Administration Hospital. Bloodwork, docs and all done right at the VA.
When I was conteplating my second round of tx and called my doc to set up an appt. they told me the nearest avail. appt. was 6 months wait. Frig that...I called another GI specialist, made an appt. and I was on treatments within a month. Just a thought...consider another doc?

I do not understand why you must wait. I've been waiting only to get all tests in. Then I chose to
have a nice Holiday Season.
I got in touch with www.Pegassist.com. For Christmas I got a funfilled pachkage with needle disposer, video on injection, sleep wear for eyes, and other info. I must now send in post card attached for 24 hour nursing assistance. And they have assistance. I am calling this week I cannot wait for SS to get sh t together. Plus my doctor said that he can get me on for free. Maybe you need a better doctor, check around...it is your health! I did. As of Monday I call Dotor and hope to go within weeks to get this Tx started and over.
I found a comment on a MASH once by Hawkeye very
important to thoughts on drinking......."I will only have a drink when I want one, not when I need one" As a drinker and bartender, I found that any excuse can help you start drinking, shooting up. But I always enjoyed my high..drinkin when I did not use the alcohol as an excuse.Life s____s! And no amount of drinking will change that...we unfortunately pay physically. And our organs do not clean up so well. I'd rather have you eme with venting than have you hurt yourself with having another..
one is too many and fifty is never enough.
I was just rejected again with SS and now I go to my lawyer. I sent them a 65 page info on Peg Tx
through my State Rep... Believe me I would love to vent on them again...I will wait til I am on Meds! I am sure no one here has had easy times...
Relax, enjoy what you will, and stick with us. The Waiting is the Hardest Part!!!!!!!!
Have a good New Year...We will beat the Dragon in 2005.

Budley....

Like Dan saids, Bush will never approve it, so it
will be atleast another 4 years

That's not quite what I said. It is not BUSH ... it is his office. Clinton didn't do anything about med-marijuana either. And if Kerry had won..he wouldn't do anything either..except enforce the federal laws on the books. It is the executive branches duty to defend the laws as set forth by congress. It is not Bush..it is the laws.. even if Bush wanted to allow it he could not.. he is bound..and his attorney general is bound by law to enforce the laws... it is CONGRESS that has to change the laws... in the last 50 years the democratic party has dominated the legislation.. 40 of the last 50 years.. and these are the laws they have given us. Blaming Bush is useless as it is congress that has to act.

Any high school Government class will tell you the same thing. Fortunately for me.. my government class was before nutrition break... so I remember. :-)

Happy New Year Dan, And thanks for the info.

NYJIMMY

Actually, I believe that the supreme court is currently deliberating on the states rights issue pertaining to med herb. If they give the states the right, then the feds can't oppose it. If anyone knows more than I, please enlighten.
PEACE, Mark

Mark,

That would be another way to straighten the med maryjane issue out. If the court rules that the states do have the right then the Feds would back off..part of the "checks and balances" of our government.

and in general...it is a conservative plank on the platform that the states rights take precedence over federal rights.. and a democratic party plank leans towrds the power being in the feds hands over states rights. I realize that might be hard to swallow but it is true.

and ... Happy New Year Jimmy... and Mark.. and ..oh my, if I name names I'll leave somebody out and I don't want to do that....

So... Happy New Year to one and all.... and to Sami most... To new beginnings in oh five.

Yeah......I keep hearing that song by Tom Petty going through my head...." The waiting is the hardest part,.....( excellent tune LOL!!)

Glad your keepin it together there Bruce, it sounds as though you got some decent advice, and probably smokin a "bowl" or two didn't hurt either (LOL)!
Hey, like someone said ( Jimmy I think).... you seem to have been getting plenty of the herbal remedies already, so there's no major problemo there, right?
Well, fu-- the dumb shit.....and sit back brother, put it in cruise control.....and just wait on the meds! Man, seriously now, you know it's out of your control.....so you might as well just chill and get on the bus when they come. Sure.....you can squawk and bitch a little ( and sometimes the greasy wheel gets the grease), but it's also a hell of alot of stress to be going through, ya know?

Why not instead......sit back, puff on a "phatty", and wait about 2 months. Believe me my friend.....it'll be here fast enough. Like I told you before...... probably after about 4 shots, you'll be saying, " Ahem, er, agh......could you make it about 3 more weeks before it gets here!"
You'll survive...... and remember;

" LOve Will See You Through"......

Thank you everyone for your great suggestions,
guidance, support and care you all have given me !
I did call the Veterans Administration at the
Ft. Harrison office,after recieving a package from
them ! The VA system has also changed now, They
now put Veterans in priority group #1-8 and that
is the order they give you appointments by !!!
I have already called the VA on Thursday and have
set up an appointment arrangement, so in about 2
weeks I will get a letter telling me when I have
to go to the Bozeman VA clinic for my appointment!
I am currently a priority group #7, so even with
them right now, I was told that it will take at
least 4 to 6 months before I can go in !!!
So I am still going to have to wait, which now is
ok !!! This is a real test for me now,because I
have to learn patients, and that is the facts !!!
Montana is a very slow state for getting anything
done,and I will have to just face that !!!!!
Meanwhile I still have the old herb- MMJ, to get
me by; and it has been working for me so far, so
if it works, don't fix it !!!
My phone # is (406) 222-2152
We Shall all survive this and fight and slay this
old Dragon, including me !!!!
Everyone have a Happy New year and be safe !!!
I love ya all!!

Love,care and Support,

Bruce

GOOD NEWS:

I just recieved a letter from the Veterans
Administration today about Bozeman Primary care
Clinic ! I have an appointment for Feb.24,2005
for 1:00 PM !!!
This will mean that I may be getting all the
tests, and etc... for the Hep-c, and may be able
to start the Tx Treatment soon then plannned !!!

Thank you all for your Love, care and Support !!

Love ya all !!

Happy New Years !!!!!


Bruce

Right on Bruce!

Bruce-
This is a golden opportunity for you to take the Bull (or the Dragon) by the horns.
You have a coupla months to get all of your info together, talk to Scherring and Roche, hook up with any local support group you might find, etc.
You can go in ready to tell (not ask) the Dr. what you need to get started with all of this.
Maybe he's willing to listen, maybe not, but he can't help but respect an educated, determined, polite approach.
I know I usually have better luck with my Gastro using this approach- good luck!

Good advice, Walt, my gastro is constantly amazed at what I learn from this site. And he apreciates it.