Philzone.org Discussion Board: Archive 2004: Hep C Archive: EATING AND TREATING YOURSELF GOOD ON TX

A few weeks ago I went into a deep funk I believe there were many factors involved getting pissed at my limitations,sides, money,trying to do too much I bit off more than I could chew so to speak. and the shit hit the fan I shut down The only thing I did right was not skip my meds EVER so my bloodwork yesterday was phine.I lost my gratitude a bit did not drink much water and lost my appetite I wasn't even listening to much music and felt like homemade shit the doc gave me Zoloft it made me feel worse. I was getting toxic. So what did I do first I have taking a sabbatical from my regular life. I just had a salad calimari(well cooked)marinara,salad,soup for breakfast when I FORCED myself to get out of bed Quakers Oats and yogurt at 8 am with meds and lots of H2O At least now I feel human again If anyone has any reecipes ,feedback,exercise tips or feels like they are getting overwhelmed hepc philzone is the spot Thank to all for your support This cannot be done alone fellow riders on the bus Peace We all know the score or if not read what we have to say.

Hey Rob,

When it come to exersize, you already know what I'll recommend....handball. You say you used to play, well then, dust off a pair of gloves and head for the nearest court. Hey, the new balls are a lot easier on you hands than the old black rocks. If you don't feel up to it, take a good long walk. And another thing, when you're feeling shitty, LET US KNOW!!!. We care, bro, and will do all we can to help, but you know that.

Jim

Da Bronx against Chicago hmmm Maybe when I go check out Wrigley Field Is everyready ready for ABB at the Beacon in March.Last year I took my first shot on that night of one of the shows. hope alot of people show up.Right now I,m not up to anything besides lite exercise but when I cleaned up I ran a few complete marathons so soon the running will be back peace

Rob,

Believe me, you know your in good company. I know every single one of us has experienced the EXACT same feelings that you have gone through. I still go through them at times and I've been off tx since last August!! I think it's just the lingering effects from the change of lifestyle I went through after being on tx for over a 2 year period from 2001 through last August. You kind of get used to being lethargic and non-active.
The best advice I can give to anyone, is to try not to let that happen in the first place to a real large degree...and to fight it the best you can! ( obviously easier said than done!!)
But, since it's happened, and it did to me.....and most of us,I would just more or less agree with Jim there in saying to try and dust yourself off a bit, and slowly but surely start to incorporate a light workout session if at first just every other day or even 2 days a week at the beginning. Anything will help I know from experience! I found taking the long walks in a nearby park the easiest and most pleasant way to get excercize, and then trying to just talk with folks ( like David M. for me), also was a huge help. I know a person's caretaker is a great help......but ( please no offense taken), there is also nothing like talking with a person who is going through the same thing as YOU!! And I'm not even speaking of a person like me who has been through it ( although I'm more than willing to be there for you). I'm speaking more of the person or people that are currently on tx......and feel like shit also. There is just something about that old saying, "Misery loves company",,, that is so true. When you can say to somebody, "Man, I just feel like crap today....I threw up twice, and have no appetite....blah, blah, blah!".....and they answer back......."Yeah, I know what you mean!" That can be very comforting for some reason (LOL).
But, since I do still feel like that alot ( being still Hep-C positive), I would be more than willing to get or recieve a call from you once or twice a week. Please feel free to call Rob, and I will do the same.In the meantime.....hang tight and keep posting as much as possible, I believe it really is therapuetic!!
Peace brother,
Martino

"The best advice I can give to anyone, is to try not to let that happen in the first place to a real large degree...and to fight it the best you can! ( obviously easier said than done!!)"

Well said, Martin. when I first started on Tx, I couldn't play ball for more than about five minutes at a time. But I kept at it figuring that if I can start beating the guys I play with, I would beat the dragon, too. Would that it were true.

One thing I did find, just getting up and trying made me feel a lot better about myself, and helped to stave off the blue devils that Rob is fighting now. Even if you can't go out and win the Toledo three-wall tourney or run a marathon, get out and do something.

Good luck,

Jim

I cannot fathom what is in store but your feelings, your belief in fighting this dragon has me positive in knowing that I will start treatment in January. The wait, tests and comments at Support Group made me think but I want to fight. Must be the Corbett blood in me.(or maybe being a New Yorker born) But I know thru other experiences that it is thru support you can gain the faith in yourself to win any battle put to you. I have a poster from Hippie days(hell I am still a hippie) that reads "The greatest Pleasure in Life is doing what people say you cannot." It is at the top of steps and I remember it every day! Rob I was worried but set backs are a normal everyday function only on treatment of any kind it seems unbearable...Call anytime, we are genererally home since we are remodeling until work breaks for spouse. I just wrote to my Senator..Spector for a Public Awareness Day for Hep C. I also worte to the two pharmaceutical companies to ask them to promote the Hep C Petition. They have a broad Webbase..Here's hoping. I am trying to get loose ends tied up(a little JOKE with my friends) before treatment. Here's to all of us Globally!

Hang Tough Rob.
You were one of the first to welcome me to this site when I started TX (shot #8 this friday) and the support and knowing I am not going through this shit alone is more valuable than I had ever imagined. I thought i had gone through the sides as bad as they were going to get - until 2 days ago - I woke up (it's relative I guess I haven't slept well in weeks) 2 days ago and I felt like I was POISONED. Man I thought I knew what you guys had been talking about - 'brain fog' and aches and overshitty feelings - and some sides that are just embarrasing almost to talk about...but in your own words...IT'S DOABLE !
I look forward to trying to make it to ABB @ Beacon in March and meeting you in person - feel free to email me directly.

Rob, you have to eat whatever sounds or tastes good to you.........and keep on drinking lots of water. One thing that Kevin ate a lot of while on tx was waffles with peanut butter. Take care of yourself - and know that you're almost there!

Go, Hortkie!!!
You are 2/3 of the way to hearing that really sweet word for yourself!

Its getting better all the time!!!!!Peace

Sometimes looking back, I can't believe how incredibly bad treatment made me feel in every way. I definitely remember feeling poisoned. I've been clean and sober for some time now (I'm in AA and NA and Al-Anon and so is my sponsor), I haven't even smoked pot for quite some time. And yet, talk about getting political, it infuriates me that we can be prescribed drugs with such mindblowing mental (on top of the physical) side effects, and yet society makes such a huge deal over the issue of medical marijuana. Give me a break.

I think the best thing to do on treatment is, do what works! I learned not to try again with foods that made me sick, because they'd just make me sick the next time, too. I think it is very possible to find our own "best case scenario" for getting through treatment. And, alot of the side effects really do get better over time. And some days you'll be having a real good time and forget TX for awhile. And the Philzone is really good medicine... moral support is good and healthy for everyone!!! Peace

Hey Rob,
I have been feeling the same way this past few weeks. So much new physical and emotional challenges over what seems like an eternity but turns out to be only the past 3 weeks. My shot day is what guides my calendar because what happens from one Friday to the next doesn't seem to be only a week. The day after my 9th shot my lovely grandmother,103 yrs, died and I felt lost for a while. She gave me nothing but comfortable, unconditional love. {{{{MAMA}}}}}}

Then the meds hit and I felt physically like I had just been run over by a truck. It felt like exercise was moving my arm up and down long enough to brush all my teeth. It was a mile to the kitchen to eat. And my muscles ache.

Then there's Thanksgiving and the 10th shot. I didn't feel like being thankful but I did manage to dig up some heartfelt thanks. That mack truck hit my body again. Shew...One foot in front of the other. Stop and breathe a minute. Bronchitis - another day off work. Back at work signed "written counseling" for attendance. Gotta keep goin to work. I get exercise getting there. Power push a few hours and set my car on cruise to safely get me home to totally crash and rest my body a while. Sometimes I'm to tired to eat. Eat or sleep. I keep chunky soup handy, though. Since I've dropped a few pounds I decided to start drinking Ensure a couple of times a day. Good calories and vitamins your bod needs to keep goin and I found it stimulates my appetite. (Medicinal marijuana I've heard is also a good appitite stimulant) ***...ear. Works for some. Watchin my fav tv shows tonight. Tomorrow after work -#11. Oh and just found out that this week 6 day mandatory, next week 7 day mandatory.

I'm thinking out loud here(I know, rambling out loud) but I think the hardest part for me is getting a grip on that fact that I am not physically capable of doing the things that I could do before. It is a physical and mental fight isn't it.

Ah... Christmas is on it's way. I think I'll get some egg nog and try to make a pecan pie some time soon.

Good Cheers!

Hey Rob,

Check the mail at your new addy.

Jim

Jim EMOTW
Susan hang in there and I know about those 6 and 7th days itwill pass do theydolite duty on your job? You can go on family leave and absensses cannot be held against you its a federal law you can take up 480hrs if you did last year 1250hrs you have to use your time either sick or vacation or then without pay thats what im on lately Tomorrow is my first day back since nov 18 this law passed in the Clinton administration worked goodfor me But its stressful to not work at least for me we have a lot of goals this law also applies for caretakers of spouses new babies parents the doc has to fill out a form Most of all,remember as bad as I felt it has gotten better KEEP VENTING Peace

Sometimes I forget to listen to the music. Thanks man. I'm gonna put on some Jerry.

@}>--;---'-- A Rose for all of Us

Just since about November of last year my life has taken on a bunch of new challenges. I am permanent part-time at my job. I get about 25 -30 hrs a week. I have decent insurance plus cover my kids. But, in the past 12 months, i've missed more work due to more dr. appointments, blood tests, shrink, you know, so I'm at a point where I have to work more to build my hours back up. If my boss had given me the proper paperwork in August I would have qualified for fmla. But since then, my hours at work have drastically dropped. I've just gotta get my mind ready for 37 more weeks of this. Whoohooo!! Die Dragon!!

I want my life back!!

Only a few short gratitude for the attitude weeks to go for you left, Rob. It's been one helluva ride on this bus, my phriend. I'm glad we've shared this long ride together. Hang Tough, it'sw all downhill from here. Everything is alldownhill after the first shot of treatments is the positive reinforcement I keep telli
g myself.

Frigginn' sticky keyboard keys... Arggg! Another messed up keypad. Onnnne more bites the dust. I musta spilt some ice cream(s) on this board and f#&ked them all up.....Again.

4yrs. on this beloved Philzone hep c threads, 3395 postings....countless keyboards ruined.

Oh well...time well spent with loving phamily ,doesn't compare to such simple problems. More time whe3n I get that new keyboard innnnnstalled.....Life is good.

4yrs. on this beloved Philzone hep c threads, 3395 postings....countless keyboards ruined.

Oh well...time well spent with loving phamily ....PRICELESS!

thanks to all feeling funky went to work(tough) yesterday was supposed to work 2 10hrs this weekend and bailed out shot day I can always get money but money cant buy health and serenity tnx I'm griping as per instrusted but still fighting peace

You're gonna be ok soon. You've made it this far...keep the faith.

I'm tryng hard tnx Kevin and all

One day at a time..... that's all anyone in the world can do about anything, really, maybe it will help to look at tx that way. Just get through each day as best you can, I'll be praying that the next day is better for you :^) Peace and Love, Fran